Hi, I’m Hannah Chalker, a Communication Coordinator supported by North West Regional Communication Service at Distinctive Options. I have interviewed several of our participants and they have given permission to share what they said.
They talk about their perspectives about challenges they face, what works well and ideas on how we can communicate better together. Let’s hear what one person (also called Hannah!) said.
Hi, my name is Hannah. I am 20. I live with PKAN, which affects my ability to move my tongue and means I can’t form words clearly.
Q: Do you struggle to communicate to others? Do people struggle to communicate with you?
Yes, people don’t always understand me, even if they know me well. I often don’t have my tablet (which has a speech app) accessible, as I don’t have anywhere handy to put it.
People who don’t know me don’t speak to me. They will speak to whoever I’m with, because they don’t understand what I’m saying.
Q What is your biggest barrier to getting your message across?
Not always having my tablet handy to use my speech app.
Q What have you found to be the best way for you to communicate to people who don’t know you well?
My Verbally app, talking really slowly and gesturing.
Q What are some annoying things that people do when communicating with you?
- Speak to me like I’m a baby; e.g. “Hello sweetie”
- Speak to the person with me, instead of to me
- Not giving me the opportunity to talk back because my phone is in my bag.
Q Do you have any advice for people who feel nervous to speak to you?
Just speak to me like you would any other 20yr old.
Q What can people do so you feel included in conversations and activities?
Look at me if you’re talking to me or ask me something and give me time to answer. Get my tablet out so I can talk back.
Thank you Hannah!
(Since this interview, Hannah has new tags on her wheelchairs which say ‘Please get my tablet out of my bag for me’ . She gesture to them any time she needs to.)