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Preparing for NDIS Planning with Regional Communication Service Support

The National Disability Insurance Scheme (NDIS) has been described as the biggest change in social services in 30 years and offers people who have received very little services in the past the opportunity to access life changing funding. But big changes can be disruptive and a bit scary, and the question on everyone’s mind is how to navigate the planning process to ensure that loved ones get the funding they need.

Planning for an NDIS planning meeting is one of the most important things people can do to ensure they get funding for communication supports that will make a difference in their lives. So, the North West Regional Communication Service has been offering  information sessions to support people to do this. Two information sessions have been run, and included information and discussion about setting goals, the range of communication aids available and where to go for support. These sessions were attended by adults with disabilities, their families and support workers. Many of the people who attended had not accessed speech pathology services in a long time and were excited about the possibilities that are now available.

Exploring communication aids and strategies

The information sessions generated a lot of discussion about how to navigate a new system that can seem quite alien and daunting. People who attended said that it was extremely beneficial to have the opportunity to exchange ideas with others going through the same process.

The groups recognised how very important it is to be prepared and organised well before your NDIS planning meeting to make sure you get the most out of your NDIS plan.

Here some of the tips suggested:

Be prepared and organised well before your planning meeting

It is recommended to start planning 3 months before your next review. There are lots of different ways to get prepared including planning workbooks and group sessions.

Collect any recent assessment reports and recommendations from existing service providers to bring to your planning meeting.

Think about your goals

Any services requested must directly link to your goals. Think about what your long and short term goals are and what supports you need to achieve these. You can talk to your current service providers for support in writing goals.

Use the language of the NDIS

It is a good idea to link your goals to the buzzwords of the NDIS. This will help your planner to understand that your goals are in line with the goals of the NDIS. Think about how your goals fit in with the following areas: Daily Living, Home, Health and Well-being, Lifelong Learning, Work, Social and Community Participation, Relationships and Choice and Control. The NDIS price guide can be a good tool to learn the lingo. 

Write a written justification if you didn’t use all the funding in your plan

There are many reasons why a person might not use all the allocated funding in their plan. There might be long wait lists for services, limited services available in rural and regional areas or an illness in the family. It is a good idea to write down why specific funding hasn’t been used and specify that it is still needed for the next plan.

Know that Support Coordination is available 

Support Coordinators are people who can help you make the most out of your funds by linking you in with service providers and helping you understand your plan. You can  ask for this to be included in your NDIS plan.

Seek support from others

It can be overwhelming to have to find services, manage funding and navigate a whole new system. Talk to family and friends about your experience and ask them to share theirs with you. Do they have a great speech pathologist that they can pass on to you? Can they pass on pearls of wisdom for preparing for planning meetings? It can make us feel supported to connect with others who are going through similar experiences.

Other tips

  • You can have more than one communication aid funded
  • Provide a quote where possible
  • Ask to see the plan before it is finalised
  • Bring someone with you to the planning meeting
  • Ask for a review if you are not happy with the plan
  • Swallowing assessments and reviews are currently being funded by the NDIS

Organisations or groups in the North West Metropolitan Region can contact the North West Regional Communication Service if interested in hosting an information session facilitated by the North West Regional Communication Service.

A special recipe for Bourkie’s Bakery

The Woodend Communication Access Group has recognised Bourkie’s Bakery as a great place to be.

Bourkies Manager receiving the award from two of the Woodend Communication Access Group members

What was the recipe for this award to happen?

Ingredients:

The Group, comprising five people with communication disabilities living in Woodend.

The Woodend Communication Coordinator, who was trained and participates in the network supported by the Regional Communication Service.

The Regional Communication Service speech pathologist

The staff and management of Bourkies

Method:

Take the partnership between the Regional Communication Service and the Communication Coordinator. Mix with the Woodend Communication Access Group.

Add the Communication Access Network’s communication friendly certificate and the Regional Communication Services’s picture based communication board.

Leave to rise.

Take the risen mixture and bake… into a certificate that lists the great things Bourkies does

Serve:

VIsit Bourkies and present the certificate to the Manager and Staff with each Group member pointing out one reason for the award.

The icing on the cake

Next, the Communication Coordinator and the Communication Access Group will work with Bourkies to develop some picture based communication aids, so there can be even better communication.

Meg Irwin (Southern Loddon Mallee Regional Communication Service) with apologies for stretching a metaphor

The Year in Review: The North West Communication Coordinator Network

The Northwest Communication Coordinator Network has been running for nearly 10 years! Two Speech Pathologists facilitate monthly meetings and site visits focusing on training, peer support and mentoring. Communication Coordinators from 8 different disability services are involved in the network. Communication Coordinators are Disability Support Workers who receive extra training and support to implement communication strategies in their service.  Communication Coordinators reflected on the barriers, enablers and successes of 2018.

A visual aid to support understanding and participation

Enablers to creating a culture of communication

Communication Coordinators listed many factors that promote a culture of communication at their services. A key factor identified was interest and support from staff. Communication Coordinators noted that having a collaborative and supportive team was essential in implementing strategies across the service. Support from managers was another factor that was identified as important. 

One Communication Coordinator stated that they have a supportive manager who is pro-active in promoting communication and that it filters down to the rest of the staff.

The monthly Communication Coordinator Network meetings were identified as highly valuable, as they provide the opportunity to share ideas and resources, receive specialised training and peer-support. Training on the topics of communication levels and appropriate strategies, sensory focused approaches, positive behaviour support and supported decision making were identified as appropriate and valuable. 

Communication Coordinators commented that the specialised support provided by the speech pathologists who facilitate the Network is highly valuable. One Communication coordinator said that receiving professional support in their own working environment provides an opportunity for practical suggestions that are relevant to their service.

Barriers to creating a culture of communication

Communication Coordinators identified the biggest barrier to creating a culture of communication at their services as insufficient time. Most Communication Coordinators are given one day per week away from clients to fulfil their Communication Coordinator role. It was reported that planning, creating and implementing communication strategies across the service needs more time than this.

Many Communication Coordinators noted that there is no time allocated for staff training. Training time would be invaluable in supporting staff to increase their knowledge and skills around communication. Another identified barrier was changes in service delivery attributed to the roll out of the NDIS. Some Communication Coordinators noted an increase in casual staff and decrease in permanent staff at their service. Many reported that this makes it difficult to implement consistent and sustainable communication strategies.

Achievements in 2018

There have been so many positive outcomes from the Communication Coordinator Network in 2018!

A strong theme has been increased opportunities for participants to make choices in daily activities. Two Communication Coordinators reported that participants are now choosing and purchasing their own drinks out in the community, where they were not previously. They reflected that participants are becoming more confident and independent.

Each monthly meeting includes Key Word Sign practice on different vocabulary, such as birthdays, holidays and football. Some Communication Coordinators have seen increased use of Key Word Sign by staff and participants at their service. One Communication Coordinator is a Key Word Sign presenter and another one is attending presenter training in January.

One Communication Coordinator has been heavily involved in NDIS pre-planning at their service. She has completed communication audits for each participant. These audits are used throughout the pre-planning process to identify goals, resources and services that would benefit the individual. A pre-planning Talking Mats set has been developed and a plan has been made for each participant to have a Talking Mats conversation prior to their next NDIS planning meeting.

Some cards for Talking Mats

Visual aids are common strategies used across services. One service has created communication boards to be used in every program. Another service has created a birthday calendar which is generating a lot of excitement; some participants are even making each other birthday cards. One Communication Coordinator has focused on supporting staff to use communication apps such as Tools2Talk+ and Key Word Sign Australia. They commented that staff are beginning to create their own visual aids for programs.

A big focus of the Communication Coordinator Network this year has been on how to successfully implement strategies. It can sometimes feel like a lot of pressure to produce lots of strategies and content but it is important to give each new strategy enough implementation time in order for them to be effective and sustainable. There have been ongoing discussions about the importance of working with staff in programs to modelling new strategies and seek staff input. Staff may require ongoing support to understand what a strategy is, how it is useful and how to use it with a participant. Giving enough time and support is essential for our work as capacity builders.

It is amazing to see such dedicated Communication Coordinators and we look forward to an exciting year ahead!

Supporting communication in the South West: A two day Communication Expo

People living in regional areas often miss out on supports or services available in metropolitan cities. It’s no different for people living with a communication disability and those who support them. The South West Regional Communication Service partnered with the Warrnambool City & Moyne Shire Council Rural Access Officers to bring a Communication Access and AAC (Alternative and Augmentative Communication) Expo to the South West.

The Expo took place over two days in the lovely seaside town of Port Fairy. There were three separate sessions for different audiences: individuals with communication difficulties, their families and support workers; speech pathologists and other healthcare professionals; and staff from a number of South West Councils. Close to 60 people came along to the expo across the two days. A guest presenter, Alison Heppell, from Scope’s Non-Electronic Communication Aid Scheme (NECAS) and Kids Chat attended both days of the expo. Alison talked about the services provided by NECAS and Kids Chat for individuals with communication disabilities. She demonstrated a large number of non-electronic communication aids. After her presentations, everyone had the chance to try the aids out and ask Alison questions.

Exploring non electronic communication aids

Everyone was also able to learn about some of the electronic communication devices available to people with communication difficulties. Liberator (a company which makes communication devices) loaned us a number of devices for the expo. Everyone had fun trying out the different devices, programs and iPad apps, directly touching the buttons or screen) or by using alternative  access methods, such as switches and head pointing.

Staff from a number of local councils participated in communication access training to help them make their workplaces and offices more inclusive and welcoming for people with communication difficulties. They then took part in accessible information training and learnt how to produce documents and written information in a way which can be more easily understood by those who have difficulties reading.

Sonia speaking from experience

Speech pathologists, health care professionals and council staff also heard from a guest speaker with a disability, Sonia, about her experiences and the barriers to access she has encountered. Sonia, and her IT consultant, Justin, demonstrated a number of ways she maintains her independence at home and out in the community. She uses switches to control her iPad, lights, and electrical appliances in her house. Sonia showed everyone the computer program which enables her to type messages, surf the web and keep working as a tutor.

Feedback from the two days of the expo was extremely positive. Everyone said they learnt a lot of new information about communication difficulties, the different types of electronic and non-electronic communication aids and supports available to those with communication difficulties.

Charlotte – South West Regional Communication Service.

Working Together to Build Communication Access –          Our First Award!

The four young women taking action on communication access in Bendigo (see last month’s blog) have made their first award to a local small business for being so communication friendly.

They regularly visit the Terminus Milkbar in Golden Square. They have always felt respected and have been able to communicate successfully without speech.

The staff were delighted with the certificate. They put it up where everyone could see it.  

Presenting the certificate


Using the communication board to explain:  “You are welcoming, take time to communicate, talk directly to us, and listen really well.”High fives all round!Everyone is proud

Southern Loddon Mallee Regional Communication Service

Working together to Build Communication Access – an update

In July we wrote about the Communication Access Group in Bendigo.

In the first half of  2018, These four young women got ready to work for more communication access in their  town.

The group is supported by the Southern Loddon Mallee Regional Communication Service and Distinctive Options.

What’s happened?

The Regional Communication Service has continued to attend the group each month. The trained Communication Coordinator in Distinctive Options has continued with the group.

The group has steadily built skills. It is now easy for group members to identify items on picture  communication displays and use them to communicate their opinions and wishes.  (Through using the communication aids, some members of the group are saying some more  words and recognising more symbols and printed words.)

In August, the group contributed to a video. It showed people from all over Victoria using communication aids. The video was for Speech Pathology Week, which had the theme “Communication access is communication for all”. Group members showed community request cards and a communication board in the video.

Makng the video: Bendigo’s fountain and community request cards

In September, the group consulted on communication aids being developed by the local water authority. They were paid for this work by Coliban Water.

After reviewing the details, this group member was happy with the communication book

The Group also prepared to acknowledge good communication access at a local small business. They used a communication board to identify the good things the business does so that everyone can communicate.

A communication board to talk about communication access

The Group is now well on its way and contributing to communication access in Bendigo!

 

Mentoring speech pathologists in AAC

CAN’s work is all about inclusion and participation of people with communication disabilities in their communities.

People with communication disabilities benefit if their speech pathologist is competent in AAC and related areas. If a person has effective AAC, opportunities for social relationships, choice, and community participation open up.

Regional Communication Services provide specialised peer support to local speech pathologists to develop their skills.

With the roll out of NDIS in Loddon, new speech pathologists have arrived.

Southern Loddon Mallee Regional Communication Service has been mentoring them on request.

This time, when another speech pathologist asked for particular support, we decided to make it a two hour session and invite anyone from local speech pathology services who wanted to come.

There was an immediate response from five different service managers. Ultimately new speech pathologists from three services attended our session on positive behaviour support and strategies for communication.

The session included:

-orientation and reminders about elements of positive behaviour support

-real life stories about working with staff and services delivering positive behaviour support

-exploring options and resources for communication support

In evaluation feedback all these were identified as key learning areas.

The speech pathologists also enjoyed meeting each other and learning together.

We all agreed this was a two hours well spent.

Personal Information Cards – For Emergencies and More

Gippsland Regional Communication Service and Wellington Shire Council have been working with local Emergency Relief Centres.

One of the things they did was develop a template and information so all members of the community could create a Personal information Card.

The card is wallet sized so a person can have it with them all the time.

On the front is the person’s name, date of birth, address, and two emergency contacts with phone numbers. On the back is the person’s communication/language, required supports and alerts.

The cards were developed for use in emergencies, particularly for people with disabilities. But the cards can be useful for everyone and at other times.

The template is on the BoardMaker program, which is used to produce visual communication aids.

 

Through previous partnerships with the Regional Communication Service, BoardMaker is available for public use at the Sale Library. An information sheet now sits with the Library’s BoardMaker discs: “How to make your own card”.

The Regional Communication Service also ran an information session for community members.

It was well attended. Everyone went home with their own personalised card.

 

The session was advertised on the local radio and in the newspaper Council notes. From the advertisements for the community session, there was further interest – this time from local police.

This simple idea may have a big future!

 

 

More choice and control at dinner time

How do people make a choice when they can only accept or reject what’s offered? That’s the problem some people living in residential facilities with little or no speech can face.

It may help if staff ask questions, such as “Would you like sausages? or “Would you like chicken?” But that’s only two choices. And the person has to know what the words mean and have a way to indicate yes or no. That’s hard for some people.

It can be easier if there are pictures to choose from.

It can be even easier – and more empowering – if the pictures are used with Talking Mats ®

Many options can be explored and a person can have a record of all the preferences they’ve identified. (That’s why Talking Mats is also a great planning tool!)

Dietitians at Bendigo Health wanted a way for people with communication disabilities living in the community to have more food choices, including the healthy ones! They wanted people with communication disabilities to have their choices heard by the people supporting them at home.

In partnership with the Southern Loddon Mallee Regional Communication Service, the dietitians developed a set of Talking Mats with photos of many different food options.

The Bendigo Health Food Preferences Talking Mats kit:

Food preferences Talking mats pack

In Talking Mats, each card shows a picture of a different item.  A person places their preferred items on the left and non-preferred items on the right. Items without a strong preference go in between.

There are 9 sets of cards in the Bendigo Health kit. They are: snacks, vegetables, cereals, takeaway, drinks, meat & alternative, fruit, dairy and exercise.

Here’s how one person completed her Talking Mat about her meat/alternatives preferences:

Example of a talking mat showing meat and meat alternatives

Some of these may be foods she had not thought of – or ones she had not been able to ask for.

Having her own photos of her mats mean she can communicate her food choices and have more variety in what she eats.

[We used the header cards (which were user tested) with permission from Talking Mats https://www.talkingmats.com/ It is well worth a visit for resources and more information about Talking Mats.

 

 

Talking Mats – giving people with a disability a voice

Talking Mats is an excellent tool that can give people living with a communication disability the ability to communicate what matters to them. This tool can be used with both children and adults and has shown through research as an effective communication method for people living with stroke, dementia, and intellectual disability.

Some examples of uses include:

  • Helping people to express their goals for day programs, rehabilitation, and therapy services.
  • Allowing people with intellectual disability to give their opinion about decisions.
  • Enhancing comprehension in people who have had a stroke.
  • Helping people with dementia to stay on topic and follow the track of a conversation.
  • Assisting people to express both negative and positive views
  • Allowing people to give feedback about a topic.

talking mats example of activities i enjoy

Above is an example of a Talking Mat. This mat has been used to understand the interests of a client. Possible interests are printed onto small cards. “Yes”, “no” and “maybe” categories are placed across the top of the board, with the topic of conversation placed down the bottom. The client then places each activity into a category to communicate areas of interest and what they like.

For more information, Visit: http://www.talkingmats.com/

By Karen Oswald East Hume Regional Communication Service Speech Pathologist